参考文献/References:
[1] Fayers PM, Machin D. Quality of life: the assessment, analysis and interpretation of patient-reported outcomes[M].John Wiley & Sons, 2013.
[2] Maite Solans BS, Pane S, Maria-Dolors Estrada MD, et al. Health-Related Quality of Life Measurement in Children and Adolescents: A Systematic Review of Generic and Disease-Specific Instruments [J]. Value in Health, 2010,11(4): 742-764.
[3] 郝元涛, 方积乾. 生存质量测定量表等价性评价研究 [J]. 中华行为医学与脑科学杂志, 2003,12(3): 338-340.
[4] Janssens A, Rogers M, Thompson Coon J, et al. A Systematic Review of Generic Multidimensional Patient-Reported Outcome Measures for Children, Part II: Evaluation of Psychometric Performance of English-Language Versions in a General Population [J]. Value in Health, 2015,18(2): 334-345.
[5] Eiser C, Morse R. A review of measures of quality of life for children with chronic illness [J]. Archives of disease in childhood, 2001,84(3): 205-211.
[6] Bullinger M, Ravens-Sieberer U. General principles, methods and areas of application of quality of life research in children [J]. Praxis der Kinderpsychologie und Kinderpsychiatrie, 1995,44(10): 391-399.
[7] Eiser C. Quality of Life in Patients With Severe Chronic Disease and Their Families (QoL) [J]. Pediatric Research, 1999,45(5): 750.
[8] Ravens-Sieberer U, Gosch A, Rajmil L, et al. KIDSCREEN-52 quality-of-life measure for children and adolescents [J]. Expert Review of Pharmacoeconomics & Outcomes Research, 2005,5(3): 353-364.
[9] Ravens-Sieberer U, Europe KG. The Kidscreen questionnaires: quality of life questionnaires for children and adolescents; handbook: Pabst Science Publ., 2006.
[10] Ravens‐Sieberer U, Gosch A, Rajmil L, et al. The KIDSCREEN‐52 quality of life measure for children and adolescents: psychometric results from a cross‐cultural survey in 13 European countries [J]. Value in health, 2008,11(4): 645-658.
[11] Robitail S, Ravens-Sieberer U, Simeoni M-C, et al. Testing the structural and cross-cultural validity of the KIDSCREEN-27 quality of life questionnaire[J]. Quality of Life Research, 2007,16(8): 1335-1345.
[12] Ravens-Sieberer U, Herdman M, Devine J, et al. The European KIDSCREEN approach to measure quality of life and well-being in children: development, current application, and future advances [J]. Quality of Life Research, 2014,23(3): 791-803.
[13] Roberts C, Freeman J, Samdal O, et al. The Health Behaviour in School-aged Children (HBSC) study: methodological developments and current tensions [J]. International Journal of Public Health, 2009,54(2): 140-150.
[14] Currie C, Gabhainn SN, Godeau E, et al. The Health Behaviour in School-aged Children: WHO Collaborative Cross-National (HBSC) Study: origins, concept, history and development 1982-2008 [J]. International Journal of Public Health, 2009,54 Suppl 2(2): 131.
[15] Erhart M, Ravens-Sieberer U, Dickinson HO, et al. Rasch Measurement Properties of the KIDSCREEN Quality of Life Instrument in Children with Cerebral Palsy and Differential Item Functioning between Children with and without Cerebral Palsy [J]. Value in Health, 2010,12(5): 782-792.
[16] Dickinson HO, Parkinson KN, Ulrike RS, et al. Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European study [J]. Child Care Health & Development, 2007,369(9580): 2171-2178.
[17] Erhart M, Ottova V, Gaspar T, et al. Measuring mental health and well-being of school-children in 15 European countries using the KIDSCREEN-10 Index [J]. International Journal of Public Health, 2009,54(2): 160-166.