[1]黄雪丽,张慧敏,杨苗苗,等.急性白血病患儿家庭经济负担和客观社会支持调查研究[J].卫生经济研究,2019,(07):38-40.
　HUANG Xue-li,ZHANG Hui-min,YANG Miao-miao,et al.Investigation on Family Economic Burden and Objective Social Support of Children with Acute Leukemia[J].Journal Press of Health Economics Research,2019,(07):38-40.
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急性白血病患儿家庭经济负担和客观社会支持调查研究
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卫生经济研究[ISSN:1004-7778/CN:33-1056/F]

卷:
期数:
2019年07期
页码:
38-40
栏目:
成本与费用
出版日期:
2019-06-24

文章信息/Info

Title:
Investigation on Family Economic Burden and Objective Social Support of Children with Acute Leukemia
作者:
黄雪丽1; 张慧敏1; 杨苗苗1; 王梦川1; 甄佳静1; 马新娟1; 张 洋1; 解文君1
1.中国医学科学院血液病医院（血液学研究所），天津 300020
Author(s):
HUANG Xue-li; ZHANG Hui-min; YANG Miao-miao; WANG Meng-chuan; ZHEN Jia-jing; MA Xin-juan; ZHANG Yang; XIE Wen-jun
Chinese Academy of Medical Science Hospital of Hematology (Institute of Hematology)，Tianjin 300020，China
关键词:
儿童急性白血病; 家庭疾病经济负担; 客观社会支持
Keywords:
acute leukemia in children; economic burden of family diseases; objective social support
分类号:
R19
文献标志码:
B
摘要:
目的：调查急性白血病患儿家庭经济负担和客观社会支持现状，为提高白血病患儿的医疗保障和社会支持提供经济学依据。方法：选择2015年在某三甲血液病专科医院治疗的急性白血病患儿，调查分析其直接医疗成本、直接非医疗成本、间接成本和社会支持数据。结果：急性白血病给患儿家庭带来的经济负担平均达500 289.18元，其中直接医疗成本占62.59%；患儿可获得的社会支持平均为202 789.96元，医疗保险和慈善救助是社会支持的主要来源。结论：儿童急性白血病给患儿家庭带来巨大的经济负担，应通过完善医疗保障制度和慈善救助
Abstract:
Objective To investigate the family economic burden and objective social support status of children with acute leukemia，and to provide an economic basis for improving medical care and social support for children with leukemia. Methods Children with acute leukemia who were treated in a tertiary blood disease specialist hospital in 2015 were selected to investigate their direct medical costs，direct non-medical costs，indirect costs，and social support data. Results: The economic burden of acute leukemia on children's families averaged 500 289.18 yuan，of which direct medical costs accounted for 62.59%；the average social support for children was 202 789.96 yuan，medical insurance and charity assistance were the main source of social support. Conclusion Children with acute leukemia bring huge economic burden to children's families. We should improve the medical security system and policies of charity rescue fund，and at the same time use social forces，to reduce the impact of disease on the family economy.

参考文献/References:

[1] Ching-Hon Pui, 李伟京. 儿童急性白血病生物学特点、危险度分层和治疗的最新进展(上)[J]. 中国小儿血液与肿瘤杂志, 2012, 17(1):40-45.
[2] 沈树红. 儿童急性髓系细胞白血病诊断治疗进展[J]. 中华实用儿科临床杂志, 2016, 31(3):165-171.
[3] Tsimicalis A, Stevens B, Ungar W J, et al. The cost of childhood cancer from the family's perspective: a critical review[J]. Pediatric Blood & Cancer, 2011, 56(5):707-717.

更新日期/Last Update: 2019-06-24